Rare Disease Organizations

If you are interested in having your rare disease–specific or advocacy organization listed in both RareMDx™ and RareLook™, please complete the form below with the requested information.

Organizations included on www.raremd.com are welcome to display our logo with a hyperlink on their website. This creates a mutually beneficial opportunity to support each other’s missions—and, most importantly, to assist patients and caregivers seeking information and support for rare, genetic, and neglected tropical diseases.

Note: While Neglected Tropical Diseases (NTDs) are not rare in some regions/countries, they may be considered rare in others.

Become a part of RareMDx™ and RareLook™

Name(Required)

Email address. (We do not include any external email address on our website).(Required)

Country of Residence(Required)

Name: Rare Disease(s) Society, in local language and English(Required)

Name: National, Regional or International Organisation for Rare Diseases, in local language and English(Required)

Name: National, Regional or International Organisation for Neglected Tropical Diseases (NTD's), in local language and English(Required)

Organization website URL(Required)

Proof of license or registration as charitable organization with the appropriate authorities in country of residence(Required)

Please list all rare, genetic and neglected tropical diseases your organization supports(Required)